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Recent Posts

  • The Girl With Green Hair December 5, 2020
  • How to Pandemic March 22, 2020
  • Navigating Hope and A New Medication November 1, 2019
  • A poem for 2018 January 1, 2019
  • A Journal entry – January 2018 – “Why is writing so difficult?” December 23, 2018
  • Schedule – a poem July 14, 2018
  • Listening July 14, 2018
  • Ready April 19, 2018

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I survived but my hair did not. Chemo hasn’t hit me too hard with side effects thankfully but the hair loss was immediate. Still self conscious but also fine with it for me. Showers and getting out the door is much easier! We all have such different (yet learned) responses to the rigors of cancer, but like any other serious diagnosis, it either reminds you of what’s important and/or you meet yourself for the first time. Those are good things that health doesn’t always afford. Self awareness and ego are difficult to contend with, but that’s the work. It’s always hard, it’s always a lot and at the same time it doesn’t have to be heavy. That is my encouragement. ❤️ #cancer #PTLD #cysticfibrosis #doublelungtransplant #beherenow
After two unscheduled infections I’m finally able to get back on my chemo regimen and getting my second dose today. And then… hopefully home, but I’m always hesitant as I’ve been thwarted at the last minute too many times before. #doublelungtransplant #PTLD #cysticfibrosis #dontgetsick
8 months today since my transplant. Yesterday I decided it was time to let my hair go. It had been falling out and was down to whisps that I pulled back. I feel free now, like I can really move forward. It’s definitely a different look but it’s growing on me and it feels just so good. I’m loving being back in Alaska and life is simple and easy at present. Im going to see how long I can keep it that way. #posttransplant #lungandlivertransplant #cysticfibrosis #elizabethspeople
This is me and my life long friends, my crew, My on call support for the last 3 years since moving to Seattle for transplant. They have done so much for me and I’m forever grateful to have had them here. They made Seattle feel like home. They have always been my second family as we were best friends growing up and the bond never broke. I’m so lucky to have gotten to go through this season with them by my side.
Yesterday we took the afternoon and found a beach 2 hours away then took the scenic route home which led us through the tulip fields near sunset. It was so amazing feeling great the whole day and knowing we didn’t have to rush home so I could do an hour of breathing treatments before bed. || Due to a change in some of meds I have had way more energy the past week and it has felt so wonderful! I’ve been able to pack and actually get through tasks in a day without pushing through brain fog and heavy eyes. I love getting these breakthroughs that allow me to see what is possible for my future more clearly. #transplantrecovery #doublelungtransplant #livertransplant #cysticfibrosis
I just got these in the mail and was curious if any one of you sent them? If you don’t want to say please know I got them, I love them, and thank you!! ❤️

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