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  • The Girl With Green Hair December 5, 2020
  • How to Pandemic March 22, 2020
  • Navigating Hope and A New Medication November 1, 2019
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Some recent art from yours truly. I’ve finally branched out to taking on requests and commissions, and that feels scary and fun at the same time. I want to keep developing my skills as it’s the thing that gives me the most joy and delight.
Today was the first day I’ve been able to were shoes rather than my big boots. My swelling finally resolved this week and my legs feet and arm are all looking and feeling normal again! And just in time too as my arm restrictions are finally over and I have full range movement again. 🙋‍♀️ Got to go walk on the beach (would have been better with my boots, but oh well). Didn’t take any pictures of that but here is a shell I painted. Feels good to be able to really get out and start getting my strength back. #transplantrecovery #10weeksposttranspant #doublelungtransplant #livertransplant #cysticfibrosis #watercolorart
A strange thing has happened, after years of only drinking coffee with cream I now prefer it black with just a little sugar. All the new meds have altered my taste buds and now I only want really bold undiluted flavors. The prednisone also has craving all the snacks when I didn’t ever crave them before. Trying to be good though still as the steroids also are causing high blood sugars so I have to take insulin until I taper down on my prednisone dose. For now though, I’m just surprised and yet delighted that I am enjoying coffee again. 😅 #transplantrecovery #doublelungtransplant #livertransplant #strongblackcoffee
I realize I haven’t checked in in a while. I had a lovely cozy Christmas with Jamie, which was perfect. As much as seeing family and friends would have been wonderful, I find myself grateful for the ability to go into hibernation mode. Recovery is so up and down with energy and discomfort that to never have to leave my house is vastly preferable still. My pain is much less, but I’m having discomfort with eating and constipation still. It’s being addressed but like all things it takes time. Here are a few Christmas pictures of my space. It’s messy but somehow functional. I’m Definitely am dreaming about a studio space to spread out in, but for now this is just fine. So yes, I’m doing really well. I’m walking much more steady, my sit to standing muscles are getting stronger but still lacking a bit, and my lungs feel more loose and expansive by the day. I’m so so grateful. Love you all, e.
Today was a glorious day that seemed to hold all the ingredients for what I have been craving for years. The ability to go slow, to wake up and immediately start painting while drinking tea, chatting with the husband and not doing any breathing treatments. I found myself asking J if there was some important thing I am missing, something I have left undone. Was I putting off a treatment that would put me behind schedule for the day? No, he said. I had done everything. I could just stay at my desk as long and as I wanted. That was a strange and wonderful feeling. - these paint brushes came out of the money that friends and family have given for fun and needs. I have been drooling over new watercolor brushes and it was so fun to break them out finally and see what they can do. I foresee a lot more painting in my future. 😍 thank you again to everyone for your generosity and love. I’m humbled and so, so amazed and grateful. #transplantrecovery #doublelungandlivertransplant #6weeksposttransplant #organdonation #penandwatercolor
More post surgery pictures. I’m heartened to see the progress. As usual the bruising from the heparin shots (to prevent blood clotting post surgery) in my stomach make it all look so much more dramatic. The stitches on my sides are from the last big chest tubes that came out and the other little round scares are from the other tubes. I have my stomach staples out and hopefully today I’ll get the ones along the clam shell (along my chest) removed. I have more energy every day and I’m happy to say I only have little aches and pains here and there so there isn’t a lot of pain and it’s very manageable. I am so grateful for this miracle, for the person who gave me this gift, for all your support and prayers and to everyone who has cared for my body these past weeks to give it the best chance to heal and return to me. - #transplantrecovery #doublelungandlivertransplant #organdonation #cysticfibrosis

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