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Recent Posts

  • The Girl With Green Hair December 5, 2020
  • How to Pandemic March 22, 2020
  • Navigating Hope and A New Medication November 1, 2019
  • A poem for 2018 January 1, 2019
  • A Journal entry – January 2018 – “Why is writing so difficult?” December 23, 2018
  • Schedule – a poem July 14, 2018
  • Listening July 14, 2018
  • Ready April 19, 2018

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This is me and my life long friends, my crew, My on call support for the last 3 years since moving to Seattle for transplant. They have done so much for me and I’m forever grateful to have had them here. They made Seattle feel like home. They have always been my second family as we were best friends growing up and the bond never broke. I’m so lucky to have gotten to go through this season with them by my side.
Yesterday we took the afternoon and found a beach 2 hours away then took the scenic route home which led us through the tulip fields near sunset. It was so amazing feeling great the whole day and knowing we didn’t have to rush home so I could do an hour of breathing treatments before bed. || Due to a change in some of meds I have had way more energy the past week and it has felt so wonderful! I’ve been able to pack and actually get through tasks in a day without pushing through brain fog and heavy eyes. I love getting these breakthroughs that allow me to see what is possible for my future more clearly. #transplantrecovery #doublelungtransplant #livertransplant #cysticfibrosis
I just got these in the mail and was curious if any one of you sent them? If you don’t want to say please know I got them, I love them, and thank you!! ❤️
Update: I get to go back to Alaska while I wait for a new liver! I should be able to be there in June. This the image of just a some of what I’m looking forward. Miss my mountains and birch trees and Marchetti’s cabin on the lake, as well as all the places I have yet to explore. ❤️
Update: so unfortunately they were unable to clear the blocked artery that is causing all the liver issues and so as of today I am officially on the liver transplant list. It’s crazy to me that it’s exactly one week shy of my origin listing date for lungs and liver 3 years ago. I’m glad to have a plan and even though it’s such a disappointment, it’s also peaceful for the most part. | I’m continuing to recover both from this last month of infections and simultaneously from my original transplant. All my emotions that I hadn’t quite felt before are finally catching up with me. So I just randomly cry a lot. Not because I’m scared or mad but more from weariness I think. However, Jamie and I are back together now and we can more easily face the decisions ahead of us. We made it to a beach today and did a little hiking too, which felt good. So onward we go. Thank you for your continued prayers and support especially as This part of the journey isn over yet. Much love,
Hey friends I wanted to update you all on my current health status.

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